Rare in Common: the podcast

By Cambridge BioMarketing

Listen to a podcast, please open Podcast Republic app. Available on Google Play Store and Apple App Store.


Category: Science

Open in Apple Podcasts


Open RSS feed


Open Website


Rate for this podcast
    

Subscribers: 3
Reviews: 0
Episodes: 29

Description

Rare in Common is a podcast about the unique stories of people affected by rare disease. Host Andra Stratton, a rare disease advocate, speaks with different members of the rare disease community, including patients, caregivers, healthcare professionals, and researchers. Join us as we tackle topics such as FDA approvals, national awareness campaigns, finding hope and support within the rare community, and the extraordinary challenges of living with a rare disease. Click. Listen. Feel.

Episode Date
Episode 29 – “It’s not going to control my life:” Adapting to life with LEMS
Apr 28, 2022
Episode 28 – #RareDiseaseTruth: how a hashtag is changing the conversation this Rare Disease Day
Feb 25, 2021
Episode 27 – “It’s working time”: building Sophie’s Neighborhood
Jul 30, 2020
Episode 26 – From diagnosis to network director—living with XLH
Jun 25, 2020
Episode 25 – What does COVID-19 mean for the rare disease community?
Apr 09, 2020
Episode 24 – The promise of genetic testing in rare
Mar 26, 2020
Episode 23 – Breaking through with interactive education in rare disease
Feb 27, 2020
Episode 22 – Misdiagnosed: The importance of genetic testing
Jan 30, 2020
Episode 21 – From broad questions to exact answers
Dec 19, 2019
Episode 20 – Taking back life by tackling diagnosis
Nov 21, 2019
Episode 19 — Exploring transgenics—the forefront of genetic advancement in rare
Jul 18, 2019
Episode 18 — Connecting the dots in the network of rare
Jun 20, 2019
Episode 17 — The hope that comes with a name: the power of a diagnosis
May 23, 2019
Episode 16 — Voices of ACMG: On the floor at the 2019 annual meeting
May 09, 2019
Episode 15 — The A, T, G, and C’s of genes: exploring genetics with Dr. Anthony Gregg
Apr 25, 2019
Episode 14 — “Beautifully heartbreaking”: one mom’s rare and incredible journey
Mar 28, 2019
Episode 13 — Rare Disease Day: Looking back. Forging ahead
Feb 28, 2019
Episode 12 — When all the stars align in the fight against ALL
Jan 24, 2019
Episode 11 — “I got here because I asked for help”: coming together in rare
Dec 20, 2018
Episode 10 — When a rare disease treatment fails approval, what happens next?
Nov 29, 2018
Episode 9 — From physician to CEO; always a passion for rare
Nov 15, 2018
Episode 8 — On location: Global Genes RARE Patient Advocacy Summit
Nov 01, 2018
Episode 7 — Blood brothers and sisters: the bond of hemophilia A
Oct 04, 2018
Episode 6 — Two rare: fighting Marfan and Ehlers-Danlos
Aug 30, 2018
Episode 5 — The power of siblinghood in rare
Jul 20, 2018
Episode 4 — Taking on rare as a family
Jun 28, 2018
Episode 3 – Ehlers-Danlos and rare art
Feb 28, 2018
Episode 2 – On trial
Feb 28, 2018
Episode 1 – Hanging out with zebras
Feb 28, 2018