If We Knew Then - Down Syndrome Podcast
By Stephen and Lori Saux
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Category: Parenting
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Subscribers: 13
Reviews: 0
Episodes: 171
Description
We are parents of two children and one of them just happens to have Down syndrome. When Liam was born we didn’t know very much about Down syndrome and most of the information we did have didn’t seem very hopeful and positive. Well this podcast aims to share stories, break down stereotypes and help change the narrative by redefining Down syndrome.
| Episode | Date |
|---|---|
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170. Celebrating The Life of Carl Erskine with Ted Green
|
Apr 21, 2024 |
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169. The Annual DSDN Retreats with Ben Hughes
|
Apr 15, 2024 |
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168. Liam's 14th Birthday: Sharing Some Insight
|
Mar 08, 2024 |
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167. A Discussion About Using The R-Word with Lynette Louise
|
Feb 26, 2024 |
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166. Finding The Right Supports Without Shame - Julie Picot
|
Feb 19, 2024 |
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165. Picking The Right Pediatrician with Dr. Ilona Kleiner
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Jan 29, 2024 |
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164. Charlotte and Riley: Not Taking No For An Answer
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Jan 22, 2024 |
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163. Revisiting Patience In The New Year with Maezen Miller
|
Jan 15, 2024 |
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162. Living In The Moment and Taking the Time to Reflect On Life
|
Oct 23, 2023 |
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161. Down Syndrome Awareness Month 2023: Bringing Awareness to Our Community’s Potential
|
Oct 16, 2023 |
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160. The Inclusive Hub: A Gym For People of All Abilities with Liam Starkey
|
Oct 09, 2023 |
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159. DSALA and DSC2U: Supporting Our Spanish-Speaking Community
|
Oct 02, 2023 |
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158. Best Buddies with Katelyn Quintero
|
Sep 25, 2023 |
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157. Ruby’s Rainbow with Liz Plachta
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Sep 18, 2023 |
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156. GiGi’s Playhouse with Nancy Gianni
|
Sep 11, 2023 |
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155. Using Your IEP to Make the Most of Middle School
|
Sep 04, 2023 |
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154. Revisiting Our Interview with Megyn Price
|
Aug 28, 2023 |
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153. Revisiting Jad Issa’s Story: A Man with Down Syndrome Raises a Family - An Interview with Sader Issa
|
Aug 21, 2023 |
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152. Revisiting The Canadian Down Syndrome Society’s Project Understood - Training Speech Recognition Technology
|
Aug 14, 2023 |
|
151. The New York City Buddy Walk and Times Square Video with Abby Brandon-Livits and Misty Adams
|
Aug 07, 2023 |
|
150. Down Syndrome Research, Ableism and The Right To Just Be with Dr. Eric Rubenstein
|
Jul 31, 2023 |
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149. Down Syndrome and Alzheimer’s Research with Dr. Tom Mahan
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Jul 24, 2023 |
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148. RODS Heroes - Our Interview with Brady Murray
|
Jul 17, 2023 |
|
147. T21 Coffee - Giving Back to the Down Syndrome Community - Johan Lindborg
|
Jul 10, 2023 |
|
146. Down Syndrome Diagnosis Network (DSDN) with Ben Hughes
|
Jul 02, 2023 |
|
145. A Grassroots Movement to Change the Narrative: A Conversation with Ted Green
|
Jun 27, 2023 |
|
144. Non-Speaking Is Not Non-Communicating - Vaish and Sid Sarathy
|
Jun 20, 2023 |
|
143. Letting Go: A Conversation with Karen Maezen Miller
|
Jun 13, 2023 |
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142. Learning From Our Mistakes: Deconstructing an IEP with Julie Picot
|
Jun 05, 2023 |
|
141. Julie and Aaron Picot: The First 5 Years of Their Journey with Down Syndrome
|
May 29, 2023 |
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140. Keeping Up with Bertie - An Update with Melissa Kynoch
|
May 08, 2023 |
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139. Looking Back and Seeing the Effects of a Non Inclusive Environment - Indira Cruz
|
Apr 23, 2023 |
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138. ’Yes. No. Maybe.’ - Our Entry In The 2023 Easterseals Disability Film Challenge
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Apr 11, 2023 |
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137. Citizens of the Wold Charter Schools: Christina Aries and Maureen Lamorena-Tatsui
|
Mar 27, 2023 |
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136. World Down Syndrome Day with Dr. Eric Rubenstein and his Co-Researcher Team
|
Mar 20, 2023 |
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135. Revisiting with Children’s Hospital Los Angeles Pediatrician Dr. Mona Patel Gera
|
Mar 12, 2023 |
|
134. Your Dentistry Questions Answered - Dr. Jill Lasky
|
Mar 05, 2023 |
|
133. Liam Turns 13: Let The Teenage Years Begin
|
Feb 20, 2023 |
|
132. Black History Month: Revisiting Our Interview with Willie Dawkins
|
Feb 13, 2023 |
|
131. The Things We Learn: The Evolution of An Advocate
|
Feb 06, 2023 |
|
130. Michael Sanford: An Advocate for Diverse Casting in Hollywood - Part 2
|
Jan 30, 2023 |
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129. Michael Sanford: An Advocate for Diverse Casting in Hollywood - Part 1
|
Jan 23, 2023 |
|
128. The Next Generation of Advocacy
|
Jan 17, 2023 |
|
127. Revisiting A Loving Kindness Meditation with Paul Denniston
|
Jan 08, 2023 |
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126. Happy New Year: Revisiting The Practice of The Beginner’s Mind with Maezen Miller
|
Dec 31, 2022 |
|
125. A Season of Hope
|
Dec 20, 2022 |
|
124. Revisiting with Caroline Bencze-Fernandez Part 2: At Home Tools and Supports
|
Nov 28, 2022 |
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123. Revisiting with Caroline Bencze-Fernandez Part 1: Early Intervention
|
Nov 21, 2022 |
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122. Happy Anniversary: Things We’ve Learned Over 18 Years
|
Nov 08, 2022 |
|
121. Down Syndrome Awareness Month 2022
|
Oct 29, 2022 |
|
120. The Secret Episode - Living For The Moments
|
Oct 22, 2022 |
|
119. Walking The Walk, Breaking Down Stereotypes - with Dr. Eric Rubenstein and Kaethe Sigelko
|
Oct 15, 2022 |
|
118. The Best We’ve Got: The Carl Erskine Story with Ted Green
|
Oct 08, 2022 |
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117. Having The Patience To Be Where You Are - A Conversation with Karen Maezen Miller
|
Oct 01, 2022 |
|
116. Mother Asana: “The Art and Voice of Autism” with Gina Uricchio
|
Sep 24, 2022 |
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115. Functional Nutrition with Dr. Vaish Sarathy
|
Sep 10, 2022 |
|
114. Liam Goes To Middle School: Leaving The Past Behind Us
|
Sep 03, 2022 |
|
113. Student Led IEPs to Determine Ones Own Path of Self-Advocacy with Ellen Coulston
|
Aug 20, 2022 |
|
112. Seeing The Whole Child: Our Conversation with Licensed Child Psychologist Dr. Beverly Celotta
|
Aug 13, 2022 |
|
111. Kicking Down Barriers: Our Conversation with College Kicker Caden Cox
|
Aug 05, 2022 |
|
110. The Future of Research and the Hope on the Horizon with Eric Rubenstein
|
Jul 30, 2022 |
|
109. Parenting Is Parenting: A Conversation with Paul and Kerry Daugherty
|
Jul 23, 2022 |
|
108. Playground of Empathy and Empathable with Micah Kessel
|
Jul 16, 2022 |
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107. Graduating Elementary School: A Culmination of What We Learned
|
Jul 09, 2022 |
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106. Zeno Mountain Farm: Telling Stories of Diversity and Inclusion - Ila Halby
|
Jun 25, 2022 |
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105. The Improvaneer Method: Using Improvisation To Build Skills and Change Perceptions - An interview with Rob Snow
|
Jun 18, 2022 |
|
104. Lena Dunham: A Champion For Diversity and Inclusion
|
Jun 11, 2022 |
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103. Finding Our Way Through A Tough Conversation - Lynette Louise
|
Jun 04, 2022 |
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102. DSC2U: Preventative and Proactive Means To Staying Healthy with Dr. Brian Skotko
|
May 28, 2022 |
|
101. Learning To Take Things Step By Step: with Michelle & Paul Tesori
|
May 21, 2022 |
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100. Celebrating 100 Episodes
|
May 14, 2022 |
|
99. Remembering Your Power: Happy Mother’s Day
|
May 06, 2022 |
|
98. The Easterseals Disability Film Challenge and The Importance of Everyone’s Story Being Told
|
Apr 16, 2022 |
|
97. Trusting Your Journey and Embracing The Pivot - Karen Maezen Miller
|
Apr 09, 2022 |
|
96. The Power Of Words: The Words We’ve Learned and How They Give Us Power
|
Apr 02, 2022 |
|
95. Aorta Borealis: Telling His Story Through Music with Jesse Norell
|
Mar 26, 2022 |
|
94. Assuming Intelligence: Changing the Narrative of Down Syndrome with Dr. Vaish Sarathy
|
Mar 19, 2022 |
|
93. Willie Dawkins: Desegregation and the Foundational Ingredients in the Fight for Inclusion
|
Mar 12, 2022 |
|
92. Liam Turns Twelve: A Mother’s Message
|
Feb 24, 2022 |
|
91. Valentine’s Week: Changing Hearts & Minds About Education
|
Feb 18, 2022 |
|
90. An Uncomplicated Life: A Father’s Memoir of His Exceptional Daughter with Paul and Kerry Daugherty
|
Feb 11, 2022 |
|
89. Inclusion at The Sundance Film Festival
|
Feb 04, 2022 |
|
88. Healing Through Yoga: Transform Loss Into Empowerment with Paul Denniston
|
Jan 28, 2022 |
|
87. Downs & Towns: Our Conversation with Houston Vandergriff
|
Jan 21, 2022 |
|
86. Making Changes And A New Beginning
|
Jan 14, 2022 |
|
85. Happy New Year: The Chromosome Song
|
Dec 31, 2021 |
|
84. Happy Everything To Everyone: A Holiday Message
|
Dec 24, 2021 |
|
83. The Self Determination Learning Circle at Club 21 with Kelly Kulzer-Reyes
|
Dec 17, 2021 |
|
82. John’s Crazy Socks - Spreading Happiness with John & Mark Cronin
|
Dec 10, 2021 |
|
81. USA Skateboarding’s “Skateboarding For All” Initiative with Miki Vuckovich
|
Dec 03, 2021 |
|
80. Bertie’s Heart Surgery: Talking About The Scary Stuff with Melissa Kynoch
|
Nov 25, 2021 |
|
79. Reaching Our Advocation Milestones As Parents - with Julie Picot
|
Nov 19, 2021 |
|
78. A Son’s Advocacy: Another Conversation with Sader Issa
|
Nov 12, 2021 |
|
77. Practicing Gratitude Without Expectations: An Interview with Karen Maezen Miller
|
Nov 05, 2021 |
|
76. Catching Up with Melissa Kynoch: A Year and a Half Later
|
Oct 29, 2021 |
|
75. A Loving Kindness Meditation Gift from Paul Denniston
|
Oct 15, 2021 |
|
74. Creating An Inclusive Superhero Universe: A Conversation with Jack and Caitie Clonan
|
Oct 07, 2021 |
|
73. Down Syndrome Awareness Month: Acknowledging Those Who Came Before Us
|
Oct 01, 2021 |
|
72. Gifts of the Journey: A Sibling Conversation with Amy Hyde
|
Sep 24, 2021 |
|
71. Fasten Your Seatbelts: A Crash Course on Down Syndrome for Brothers and Sisters
|
Sep 17, 2021 |
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70. Insights of a Teenage Sibling: with Sophia Saux
|
Sep 10, 2021 |
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69. Uncertainties About the Return to School? You’re Not Alone.
|
Sep 02, 2021 |
|
68. The Importance of Special Needs Trusts and a Conservatorship: with Enrique Perez
|
Aug 27, 2021 |
|
67. The Beginner’s Mind: An Interview with Karen Maezen Miller
|
Aug 20, 2021 |
|
66. A Conversation About Alzheimer’s with Dr. Brian Skotko
|
Aug 13, 2021 |
|
65. The Down Syndrome Resource Foundation, Part 2 with Liv Meriano and Danielle McKinney
|
Aug 06, 2021 |
|
64. Changing Our Mind and Approach to Education: Down Syndrome Resource Foundation
|
Jul 30, 2021 |
|
63. Just One Of The Guys: Our Interview with Jake Pratt
|
Jul 22, 2021 |
|
62. Summer Advocacy: The Challenge Of Letting Go And Taking A Break
|
Jul 15, 2021 |
|
61. Hearts Of Joy International: Our Conversation with Lauren Costabile
|
Jun 25, 2021 |
|
60. Downright Discrimination - Changing The Laws To Confirm That Every Life Is Equal
|
Jun 17, 2021 |
|
59. Education, Adolescence and Advocacy: A Community Conversation with Mary Cole
|
Jun 11, 2021 |
|
58. COVID-19, Vaccinations and Picking Up Where We Left Off on the Road to Inclusion with Dr. Brian Skotko
|
Jun 04, 2021 |
|
57. Revisiting The Story of Chris Nikic: Becoming an IRONMAN
|
May 28, 2021 |
|
56. My Twin Brother Has Down Syndrome: Our Community Conversation with Julia Toronczak
|
May 21, 2021 |
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55. Coming Down The Mountain, Part 2: Why This Movie is so Important - An Interview with Director Julia Anne Robinson
|
May 14, 2021 |
|
54. Mother (noun): An Ultimate Example of Its Kind - Our Mother’s Day Message
|
May 06, 2021 |
|
53. Discussing Infertility and a Down Syndrome Diagnosis with Natalie Spiteri
|
Apr 30, 2021 |
|
52. A Community Conversation with Megyn Price: Celebrating Uncle Bill
|
Apr 23, 2021 |
|
51. Eleven Years With Liam: Celebrating Another Trip Around The Sun
|
Apr 16, 2021 |
|
50. Acknowledging and Dismantling Fear’s Presence In Our Lives: An Interview with Karen Maezen Miller
|
Apr 08, 2021 |
|
49. Discussing Health and Inclusion with Pediatrician Dr. Mona Patel Gera
|
Mar 26, 2021 |
|
48. World Down Syndrome Day: The Path To Finding Our Celebration
|
Mar 19, 2021 |
|
47. What Do We Do When Faced with Challenges and Negativity? An Interview with Karen Maezen Miller
|
Mar 11, 2021 |
|
46. Coming Down The Mountain: Our Interview with Julie Anne Robinson
|
Mar 05, 2021 |
|
45. Speech Therapy with Kerri Wake of McRory Pediatrics
|
Feb 25, 2021 |
|
44. Looking Back At A Decade: Liam Turns 10
|
Feb 19, 2021 |
|
43. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 2
|
Feb 11, 2021 |
|
42. Occupational Therapy with Erin Stanford of McRory Pediatrics - Part 1
|
Feb 05, 2021 |
|
41. Behavior: A Conversation with Kyle Davis of McRory Pediatrics
|
Jan 29, 2021 |
|
40. Discussing Supports with Nikki McRory of McRory Pediatrics
|
Jan 22, 2021 |
|
39. Our Community Conversation with Steven Gustafson of 10,000 Maniacs
|
Jan 16, 2021 |
|
38. Moving Into A New Year One Moment At A Time
|
Jan 07, 2021 |
|
37. Our Community’s Response To Emmerdale’s Negative Storyline About Down Syndrome - Cristina Bowman
|
Dec 06, 2020 |
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36. Giving Everyone Access to a Down Syndrome Specialty Clinic with DSC2U - Dr. Brian Skotko
|
Nov 25, 2020 |
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35. Building a Realistic Approach to a Healthy Dental Routine - Dr. Jill Lasky
|
Nov 20, 2020 |
|
34. How To Use The Summertime To Your Advantage
|
Nov 16, 2020 |
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33. Our Congratulations Message to New Parents
|
Nov 14, 2020 |
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32. Changing Our World - Chris Nikic’s 1% Philosophy
|
Nov 05, 2020 |
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31. Using The Arts To Tell Your Story - A Conversation with Nic Novicki
|
Oct 30, 2020 |
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30. Down Syndrome Awareness Month: Working Together To Change Perceptions
|
Oct 22, 2020 |
|
29. Insights Into Our First COVID-19 IEP Session
|
Oct 16, 2020 |
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28. A Story of Inclusion with Eleanor Baggaley – ‘Ava the Mermaid’
|
Oct 08, 2020 |
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27. Our IEP Process - Some Things We Have Learned
|
Oct 01, 2020 |
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26. PALS Programs - A Deeper Conversation About Down Syndrome
|
Sep 25, 2020 |
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25. A Right to Celebrate - When the Medical Profession Steals the Joy of New Parents - Rachel Mewes
|
Sep 18, 2020 |
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24. The Importance of Disability Inclusion in Film - Nic Novicki
|
Sep 11, 2020 |
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23. Raised by a Father with Down Syndrome - Our Community Conversation with Sader Issa
|
Sep 04, 2020 |
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22. A Meditation Gift from Paul Denniston - 30 Minute Yoga Nidra Guided Meditation
|
Aug 27, 2020 |
|
21. A Conversation About Healing and Self Care with Paul Denniston
|
Aug 27, 2020 |
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20. A New School Year: COVID-19, IEPs and Supports - Georgianna Junco-Kelman
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Aug 12, 2020 |
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19. PALS Programs - Congratulations Project
|
Aug 07, 2020 |
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18. Project Understood - Part 2 - Two Perspectives of Down Syndrome - Ed Casagrande and Matt MacNeil
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Jul 23, 2020 |
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17. Creating a Positive Dental Health Relationship - Dr. Jill Lasky
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Jul 16, 2020 |
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16. Pushing The Limits - Chris Nikic’s Road To IRONMAN
|
Jul 09, 2020 |
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15. Project Understood - Part 1 - Our Community Conversation with Ed Casagrande and Matt MacNeil
|
Jul 02, 2020 |
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14. An Honest Community Conversation with Julie Picot
|
Jun 25, 2020 |
|
13. Early Intervention - At Home Tools and Supports - Caroline Bencze-Fernandez
|
Jun 18, 2020 |
|
12. Our Interview with Melissa Kynoch - Part 2
|
Jun 11, 2020 |
|
11. The Responsibility and Power of Words on Social Media - Rachel Mewes
|
Jun 03, 2020 |
|
10. Our Interview with Melissa Kynoch - Part 1
|
May 29, 2020 |
|
9. Sibling Advocacy - Interview with Sophia Saux
|
May 22, 2020 |
|
8. Early Intervention - Interview with Caroline Bencze-Fernandez
|
May 15, 2020 |
|
7. Prenatal Care and Advocacy - Interview with Julie Picot
|
May 08, 2020 |
|
6. Managing The Stresses - The Emotional Parts of Special Needs Parenting
|
May 01, 2020 |
|
5. Preparing For Your IEP - What We Wish We Knew Then
|
Apr 24, 2020 |
|
Introduction - Our Down Syndrome Advocacy Story
|
Apr 17, 2020 |
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4. In-School Physical Therapy - Down Syndrome - Natalie Spiteri
|
Apr 13, 2020 |
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3. Early Intervention Physical Therapy - Down Syndrome - Natalie Spiteri
|
Apr 13, 2020 |
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2. All That Annual Stuff - IEP and Assessments
|
Apr 13, 2020 |
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1. COVID-19 and IEPs - Special Episode with Georgianna Junco-Kelman
|
Apr 13, 2020 |