Just Listen: Voices of PK Deficiency Podcast
By BloodStream Media
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Episodes: 37
Description
Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for
patients, caregivers, providers, and the greater community of people who are impacted by PK
deficiency. Each episode of the Just Listen podcast strives to provide listeners with critical
education, the latest scientific updates, and voices from the PK deficiency community. Learn
more about PK deficiency by visiting KnowPKDeficiency.com or connect with
KnowPKDeficiency on Facebook: bit.ly/KnowPKD. Join an inclusive community and build
connections with other hemolytic anemia allies by following @AllyVoicesRising on Instagram.
Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit
Agios.com to learn more.
This podcast is intended for informational and educational purposes only and is not intended as
medical advice. Please speak with your healthcare professional before making any treatment
decisions.
| Episode | Date |
|---|---|
|
Learnings from the Red Cell Revolution
|
Feb 28, 2026 |
|
Replay: PKD International Guidelines
|
Dec 01, 2025 |
|
Replay: Iron Overload with Dr. Sujit Sheth
|
Oct 29, 2025 |
|
Regular and Non-Regular Transfusions in PK deficiency
|
Aug 22, 2025 |
|
Monitoring & Management of Chronic Complications in PK Deficiency
|
Jun 25, 2025 |
|
Understanding the PKD Life Stage Model
|
Apr 30, 2025 |
|
PKD Conference
|
Jan 16, 2025 |
|
Optimizing Nutrition for PK Deficiency: A Patient & Dietitian's Perspective
|
Oct 28, 2024 |
|
Understanding Splenectomy in PK Deficiency
|
Sep 16, 2024 |
|
PKD International Guidelines
|
Jul 22, 2024 |
|
Raising Two Children with PK Deficiency
|
Jun 17, 2024 |
|
Raising & Being a Teen with PK Deficiency
|
May 20, 2024 |
|
Replay: My Dad Has PK Deficiency
|
Jan 23, 2024 |
|
Peak Registry
|
Nov 29, 2023 |
|
Genetics in Pyruvate Kinase Deficiency
|
Oct 25, 2023 |
|
REPLAY: MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
|
Sep 27, 2023 |
|
Iron Overload with Dr. Sujit Sheth
|
Aug 23, 2023 |
|
Definitive Diagnosis
|
Jul 17, 2023 |
|
My Dad Has PK Deficiency
|
Jun 19, 2023 |
|
Aging with Pyruvate Kinase Deficiency
|
May 24, 2023 |
|
REPLAY: Pyruvate Kinase Deficiency Foundation
|
Apr 26, 2023 |
|
Understanding Clinical Trials
|
Mar 29, 2023 |
|
LIVE in New Orleans: A Red Cell Revolution
|
Feb 27, 2023 |
|
Caregiver Series: Transitioning to Adult Care
|
Jan 31, 2023 |
|
Replay: The History of PKD
|
Dec 20, 2022 |
|
Parents Support: A PKD Caregiver Series
|
Nov 21, 2022 |
|
MythBusters Part 2 - Pyruvate Kinase Deficiency Edition
|
Oct 19, 2022 |
|
MythBusters Part 1 - Pyruvate Kinase Deficiency Edition
|
Sep 29, 2022 |
|
The History of PKD
|
Jul 20, 2022 |
|
I Walked in to My Hematologist's Office: The Power of Storytelling
|
Jun 29, 2022 |
|
Beyond the Numbers: The Impact of PK Deficiency
|
May 18, 2022 |
|
Pyruvate Kinase Deficiency Advocacy Advisory Council (AAC)
|
Apr 20, 2022 |
|
Pyruvate Kinase Deficiency Foundation
|
Mar 16, 2022 |
|
Thrive with Pyruvate Kinase Deficiency Patient Organization
|
Feb 16, 2022 |
|
Behind the Scenes with Agios Chief Medical Officer, Dr. Sarah Gheuens
|
Jan 26, 2022 |
|
Patient Experiences with PK Deficiency
|
Dec 15, 2021 |
|
Introducing Just Listen: Voices of PK Deficiency Podcast
|
Nov 16, 2021 |