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Episode | Date |
---|---|
Rare Disease and Family Planning - Part 4
|
Aug 15, 2023 |
Life Update from Taylor & Liz
|
May 31, 2023 |
Advocacy
|
Apr 16, 2023 |
THE Not So Rare Mom
|
Mar 24, 2023 |
Challenges of the Self-Diagnosed
|
Feb 26, 2023 |
Post Appointment Anxiety
|
Feb 19, 2023 |
Fundraising
|
Feb 05, 2023 |
Meet Lily - Advocating through Community
|
Jan 22, 2023 |
Exploring Dual Therapy Treatments
|
Jan 08, 2023 |
Rare Disease and Family Planning - Part 2 - Taylor
|
Dec 18, 2022 |
Thanksgiving and Holiday Update
|
Dec 11, 2022 |
Visiting a New Specialist: A New Patient Perspective
|
Dec 04, 2022 |
Catch Up with Taylor and Liz
|
Nov 20, 2022 |
Rare Disease Myth Busters - Part 6
|
Oct 30, 2022 |
Rare Disease Myth Busters - Part 5
|
Oct 23, 2022 |
Get to Know Us Better - Part 2
|
Oct 16, 2022 |
Meet Lindsay - Living with CLOVES
|
Oct 09, 2022 |
Get to Know Us Better - Part 1
|
Sep 25, 2022 |
Rare Disease and Family Planning - Part 1 - Introduction
|
Sep 18, 2022 |
Meet Sara - Preparing Rare Disease Patients for School
|
Sep 11, 2022 |
Meet Chris - Creating Rare Disease Connections
|
Sep 04, 2022 |
Rare Disease Myth Busters - Part 4
|
Aug 28, 2022 |
Meet Leeya - Exploring the World with Rare Disease
|
Aug 24, 2022 |
Meet Emily - Creating Roles for the Patient and Family
|
Aug 21, 2022 |
For the Parents - Smooth Transition of Care
|
Aug 14, 2022 |
Rare Disease Myth Busters - Part 3
|
Aug 07, 2022 |
Mini Episode - Alpelisib Update
|
Aug 03, 2022 |
International Healthcare - UK vs US
|
Jul 31, 2022 |
Sharing Side Effects with Medical Teams
|
Jul 24, 2022 |
Sirolimus vs Alpelisib - Experiences from Two Young Adult Patients
|
Jul 17, 2022 |
Rare Disease Myth Busters - Part 2
|
Jul 10, 2022 |
Rare Disease Myth Busters - Part 1
|
Jul 03, 2022 |
What We Wish Doctors Knew
|
Jun 26, 2022 |
The Moment When ......
|
Jun 19, 2022 |
Overcoming Fatigue as a Rare Disease Patient
|
Jun 12, 2022 |
Rare Disease and Dating - Part 2
|
Jun 05, 2022 |
Mini Episode - Gratitude
|
Jun 01, 2022 |
Rare Disease and Dating - Part 1
|
May 29, 2022 |
Update from Liz
|
May 22, 2022 |
Meet Taylor and Liz - Part 2
|
May 15, 2022 |
Meet Cameron Ayala
|
May 08, 2022 |
Meet Jen - The Perspective of a Rare Disease Parent
|
May 01, 2022 |
Managing Medical Appointments
|
Apr 24, 2022 |
The Patient's Role in Rare Disease Research
|
Apr 17, 2022 |
Meet Rosie
|
Apr 10, 2022 |
Managing School and Rare Disease
|
Apr 03, 2022 |
Acceptance
|
Mar 27, 2022 |
Coping with Rare Disease
|
Mar 20, 2022 |
Meet Taylor and Liz
|
Mar 13, 2022 |