It Happened To Me: A Rare Disease and Medical Challenges Podcast
By Cathy Gildenhorn, Beth Glassman, and Kira Dineen (DNA Today)
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Subscribers: 4
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Episodes: 73
Description
The mission of our podcast is to support you, our listeners and to create community, as you confront the toughest challenges in life. All of us will experience health hardships. The real question is how we adapt. That is the focus of It Happened To Me, which wants to help you overcome limitations and live a full and satisfying life. Drawing on their own health challenges, hosts Cathy Gildenhorn and Beth Glassman interview guests who share stories and research to help you succeed in the face of difficult health obstacles. It happened to me…I’m not alone and neither are you.
We encourage you to learn more at ItHappenedToMePod.com.
Please use the contact form on our website to submit your guest suggestions, comments, questions, ideas, and feedback for the show, you can also email us directly at ItHappenedToMePod@gmail.com.
It Happened To Me is created and hosted by Cathy Gildenhorn and Beth Glassman. Steve Holsonback is our media engineer and co-producer. DNA Today’s Kira Dineen is our ...
| Episode | Date |
|---|---|
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#72 Wolfram Syndrome Expertise from Dr. Fumihiko Urano [Re-Release]
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Nov 18, 2025 |
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#71 When the Diagnosis Comes Late: Navigating Adult Wolfram Syndrome
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Nov 03, 2025 |
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#70 The First Spinraza Patients: A Rare Mama’s Advocacy for her Son with SMA
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Oct 20, 2025 |
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#69 Breath by Breath: Kenny Kasnett’s Journey Through Lung Disease and Transplant
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Oct 06, 2025 |
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#68 The Hidden Danger in Newborns: OTC Deficiency Explained by a Geneticist and a Mother
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Sep 15, 2025 |
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#67 Exploring Clinical Trials in Latin America with Julio G. Martinez-Clark
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Sep 01, 2025 |
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#66 Not Just Fatigue: Global Advocating for ME/CFS from Bed
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Aug 18, 2025 |
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#65 Invisible Swells: Surviving with Hereditary Angioedema Type III
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Aug 04, 2025 |
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#64 Challenging the Label: Living and Thriving with Trisomy 18 Part 2
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Jul 21, 2025 |
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#63 Redefining “Incompatible with Life”: A Mother’s Mission for Trisomy 18 Awareness Part 1
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Jul 07, 2025 |
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#62 Vision Through Music: Empowering Visually Impaired Kids with Adaptive Music Education
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Jun 16, 2025 |
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#61 How Jack’s Basket Is Changing the Down Syndrome Diagnosis Story
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Jun 02, 2025 |
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#60 CRISPR, Community, and Courage: A Deep Dive into Sickle Cell Advocacy
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May 19, 2025 |
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#59 From Diagnosis to Memoir: Laura Kieger’s Mission to Share Her Family’s FAP Story
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May 05, 2025 |
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#58 Living Deafblind: Carrie Francis’ Resilience After 5th Degree Facial Cleft
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Apr 21, 2025 |
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#57 APOL1-Mediated FSGS: What Families Need to Know, from Diagnosis to Advocacy
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Apr 07, 2025 |
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#56 Navigating Dual Diagnoses: Amy Raskin Shares Parenting Strategies for Diabetes and Celiac
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Mar 17, 2025 |
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#55 Growing Up with a Childhood Autoimmune Disease with Beth Glassman
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Mar 03, 2025 |
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#54 Family Planning Challenges: Cathy Gildenhorn on Miscarriages and The Miracle of Adoption
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Feb 17, 2025 |
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#53 From Journalist to Advocate: Laura Bonnell’s Mission to Support Cystic Fibrosis Families
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Feb 03, 2025 |
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#52 Adaptive Toys for Kids with Disabilities: Inspiration from Daughter with Rett Syndrome
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Jan 20, 2025 |
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#51 Niemann-Pick Type C: Understanding Symptoms, Genetics, and New Treatments
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Jan 06, 2025 |
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#50 Neuromuscular Neurology Explained: Symptoms, Treatments, and Advances with Dr. Bucelli
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Dec 16, 2024 |
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#49 Living with NMOSD: Alex Brito's Journey of Resilience and Advocacy
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Dec 02, 2024 |
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#48 Sudden Cardiac Death with The Dressmaker’s Mirror’s Dr. Susan Liebman
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Nov 18, 2024 |
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#47 Living with NAION: Rachel Schreiman’s Journey Through Vision Loss and Advocacy
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Nov 04, 2024 |
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#46 Decoding Colon Cancer: Expert Insights on Screening and Genetics from Gabrielle Shermanski
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Oct 21, 2024 |
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#45 Adapting to Blindness Before 30 with Zach Ship
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Oct 07, 2024 |
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#44 How a Kidney Transplant Saved Zach Ship’s Life at 19
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Sep 16, 2024 |
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#43 Shari Ship on Donating Her Kidney to Son
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Sep 02, 2024 |
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#42 Huntington’s Disease with Tanita Allen
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Aug 19, 2024 |
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#41 Dwarfism with Colleen Gioffreda
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Aug 05, 2024 |
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#40 Overcoming Crohn’s Through Pilates with Ryan Hodgkinson
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Jul 15, 2024 |
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#39 Genetic Testing for Rare Diseases with Amy Patterson
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Jul 01, 2024 |
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#38 Dr. Tara Zier on Stiff Person Syndrome
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Jun 17, 2024 |
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#37 Congenital Hyperinsulinism with Advocate Julie Raskin
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Jun 03, 2024 |
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#36 Cochlear Implant Surgery and Recovery with Marc Bassin
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May 20, 2024 |
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#35 Sudden Hearing Loss with Marc Bassin
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May 06, 2024 |
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#34 Bloom Syndrome with The Yasbins
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Apr 15, 2024 |
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#33 Tay-Sachs and Grief with Myra Sack
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Apr 01, 2024 |
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#32 Tay-Sachs and Carrier Screening with Dr. Matthew Goldstein
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Mar 18, 2024 |
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#31 Blood Transfusion Therapy with Lori Harada & Carly Newton
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Mar 04, 2024 |
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#30 Rare Disease Advocacy with Wes Michael
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Feb 19, 2024 |
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#29 Exploring the Potential of Artificial Corneas with Dr. Esen Akpek
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Feb 05, 2024 |
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#28 Dry Eye with Dr. Esen Akpek
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Jan 15, 2024 |
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#27 Prevention of Blindness Society
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Jan 01, 2024 |
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#26 Wolfram Syndrome Expertise from Dr. Fumihiko Urano
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Dec 18, 2023 |
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#25 Pancreatic Cancer with Patient Advocate Leslie Waldman
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Dec 04, 2023 |
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#24 Neuro-Ophthalmic Disorders with Dr. Andrew Carey
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Nov 20, 2023 |
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#23 Autoimmune Conditions with Dr. Colby Kash
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Nov 06, 2023 |
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#22 Papillary Thyroid Cancer with Carly Flumer
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Oct 16, 2023 |
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#21 Wolfram Syndrome with Parent Pat Gibilisco
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Oct 02, 2023 |
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#20 Familial Dysautonomia Foundation
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Sep 18, 2023 |
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#19 Pierre Robin Syndrome with Corinne Merlino
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Sep 04, 2023 |
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#18 Hattersley-Urano Wolfram Syndrome with Parent Tamara Blum
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Aug 21, 2023 |
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#17 Mental Health Help with Social Worker Tamara Blum
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Aug 07, 2023 |
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#16 ALS with Brooke Eby
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Jul 17, 2023 |
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#15 Bullous Pemphigoid with argenx
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Jul 03, 2023 |
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#14 Multifocal Motor Neuropathy with argenx
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Jun 19, 2023 |
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#13 Medical Challenges Toolkit with Kimberly Callinan
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Jun 05, 2023 |
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#12 Bardet Biedl Syndrome with The Alms (Part 2)
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May 15, 2023 |
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#11 Bardet Biedl Syndrome with The Alms (Part 1)
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May 01, 2023 |
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#10 Low Vision with Dr. Judith Goldstein
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Apr 17, 2023 |
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#9 Wolfram Syndrome with Stephanie Gebel Snow
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Apr 03, 2023 |
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#8 Oculoplastic Surgery with Dr. Shannath Merbs
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Mar 20, 2023 |
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#7 Prenatal and Cancer Genetic Testing with Karen Grinzaid
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Mar 06, 2023 |
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#6 Glaucoma with Dr. Mona Kaleem
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Feb 20, 2023 |
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#5 Wolfram Syndrome with Dr. Sarah Gladstone
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Feb 06, 2023 |
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#4 Genetic Counseling for Rare Diseases with Kira Dineen
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Jan 23, 2023 |
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#3 Wolfram Syndrome with Cathy Gildenhorn
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Jan 09, 2023 |
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#2 Glaucoma and Low Vision with Beth Glassman
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Jan 09, 2023 |
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#1 Inspiration to Launch “It Happened To Me”
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Jan 09, 2023 |
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Trailer: It Happened To Me
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Dec 31, 2022 |