The Grace, Grief and Grit Podcast

By Dee Daniels Media Podcast Network

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Category: Education

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Subscribers: 1
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Episodes: 29

Description

Epidermolysis Bullosa is often called the worst disease you’ve never heard of. The Grace, Grief and Grit Podcast along with the nonprofit organization Heroes for Hallie Grace, will shine a light on this rare condition that affects 200,000 families every year. While there are limited treatment options, currently there is no known cure. In this podcast, we will highlight the legacy of Hallie Grace who fought Junctional Epidermolysis Bullosa (JEB) with her family’s support for three months. Her family, Anne and Joe Davis, continue to raise awareness and funds to help further research in finding better treatments and ultimately a cure - and to help other families who are walking this journey.

Episode Date
The Power of Support in Grieving: Betsy Kammerud on Helping Children Heal
Aug 22, 2025
Countdown to the 4th Annual Hallie Grace Memorial Butterfly Ball for EB
May 22, 2025
Unbearable Burden: Navigating Grief in Unimaginable Circumstances with Krista Isaacson
Apr 02, 2025
Navigating Life with Grace: Ariana Covarrubias on EB, Resilience, and Authenticity
Mar 20, 2025
Season 3 Kickoff: Sippin' on Grace, Grit, and Community
Mar 13, 2025
Finding Strength in Vulnerability: A Father's Journey Through Grief
Feb 06, 2025
A Night of Stars and Strength: The LA "Rock4EB" Experience
Jan 30, 2025
From Awareness to Acceptance: The Power of Inclusion with Author Dennis Vanasse
Jan 09, 2025
Uniting for Change: A Conversation & Call-to-Action on Giving Tuesday
Dec 03, 2024
Integrative Health Therapy with Desiree Sparrow: Mindfulness and Self-Care
Nov 21, 2024
Navigating Hope: Conversations with EBRP's CEO Michael Hund
Nov 08, 2024
Connections: Capturing the Story with Lyle Dillie
Sep 19, 2024
Goals, Dreams, and the Power of Connection: We had another BALL!
Sep 05, 2024
Grief: Exploring the Communication of Emotions with Dr. Nicholas Christakis
Jul 18, 2024
THIS is what a Support Team looks like! Life Grows Around the Grief: Parents Holding Space for Parents
Apr 29, 2024
Looking Back and Looking Foward with Epidermolysis Bullosa | ft. Dr. Peter Marinkovich
Mar 28, 2024
A New Season: Lasting Legacy, Inspiring Impact!
Mar 26, 2024
Kids Grief Support, ft. Child Life Specialist Jessica Correnti
Feb 22, 2024
Savannah Ghost Pirates - EB Awareness Night is COMING!!
Feb 12, 2024
Siblings of EB - The Faces and Hearts of True Support
Jan 18, 2024
Meeting the Heroes Building Therapies for Genetic Diseases
Jan 11, 2024
Perfection of Imperfection | ft. Hodges R. Caldwell, Jr.
Jan 04, 2024
Wind to Fly Higher
Dec 14, 2023
The Journey of Hope and Connection
Dec 07, 2023
The Mom Episode
Oct 27, 2023
The Dad Episode
Jun 07, 2023
Once Upon a Ball with Cindy Brown
May 26, 2023
The Day Hallie Grace Met Hallie Grace
May 22, 2023
Hallie Grace’s Story: The Journey of Love, Hope, and Resilience
May 22, 2023