Untold Stories: Life with a Severe Autoimmune Condition

By iHeartPodcasts

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Category: Medicine

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Subscribers: 8
Reviews: 0
Episodes: 41

Description

For people diagnosed with a rare, autoimmune condition like myasthenia gravis (MG) or chronic inflammatory demyelinating polyneuropathy (CIDP), life can change in the blink of an eye. But these conditions affect everyone differently, and each person has a story to tell. Welcome to “Untold Stories: Life with a Severe Autoimmune Condition,” a Ruby Studio from iHeart Media production in partnership with argenx. Host Martine Hackett has real, eye-opening conversations with people living with rare, autoimmune conditions ranging from MG to CIDP. Learn about the hardships of diagnosis and each person’s journey towards wellness. Understand the challenges they continue to overcome as they discover how to live with these conditions and persevere through the tough times. Plus, hear from the family members and friends who stand by them every day and play important roles in their care.


Episode Date
Carly and Catherine: Hope, Uncertainty, and Clinical Trials.
Aug 06, 2026
Holly: Moving Forward with Myositis.
Jul 15, 2026
Amanda: From CIDP Diagnosis to Discovering Her Purpose
Jul 01, 2026
Alicia: The Long Road to Answers with Seronegative MG
Jun 17, 2026
Mel & Lindsay: Different Diagnoses. Shared Experiences.
Jun 02, 2026
J’Sean: The Impact of MG with Ocular Symptoms
May 20, 2026
Untold Stories is back for Season 6!
May 13, 2026
Brandon & Dr. Thawani: The power of shared-decisions
Dec 24, 2025
Aging With an Autoimmune Disease
Dec 10, 2025
Adapting through Life’s Milestones
Nov 26, 2025
Rediscovering Purpose
Nov 12, 2025
Growing Through Setbacks
Oct 29, 2025
Untold Stories is back for Season Five
Oct 22, 2025
Community Support Across Borders
Oct 01, 2025
Power in Community
Sep 17, 2025
Understanding Cultural Differences
Sep 03, 2025
Navigating connection after diagnosis
Aug 20, 2025
Balancing caregiving with self-care
Aug 06, 2025
Finding Your Voice In the Healthcare System
Jul 23, 2025
Untold Stories is back for Season Four!
Jul 16, 2025
Harnessing Hope: Life Beyond Autoimmune Conditions
Oct 23, 2024
Pushing Past Grief: Staying Positive with MG
Oct 02, 2024
Embracing Gratitude: Remaining Positive in the Face of CIDP
Sep 18, 2024
Facing Frustration: The Hurdles of Life with CIDP
Sep 04, 2024
Building Confidence: Understanding Self-Worth with MG
Aug 07, 2024
Untold Stories will be right back!
Jun 26, 2024
Finding Resilience: Staying Strong with CIDP
Jun 12, 2024
Out of Loneliness: Finding Connection with MG
May 29, 2024
Untold Stories is back for Season Three!
May 22, 2024
Finding Your Pace: Building New Boundaries with MG
Feb 14, 2024
Behind the Seams: Unraveling and Restitching Life with MG
Jan 31, 2024
Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment
Jan 17, 2024
Prioritizing Care: Confronting Postpartum with MG
Dec 27, 2023
Untold Stories is Back!
Dec 13, 2023
Accessing Ambition: Professional Success While Living with MG
Aug 16, 2023
Body & Spirit: Finding Respite Despite MG
Aug 02, 2023
Leading with Love: Thriving in Marriage While Living with MG
Jul 19, 2023
Bonus Episode: The Realities of Life with CIDP
Jul 12, 2023
Building Community: Navigating Young Adulthood with MG
Jul 05, 2023
Connecting to Care: The Importance of Self-Advocacy with MG
Jun 21, 2023
Welcome to Untold Stories: Life with Myasthenia Gravis
Jun 14, 2023