Ask the Expert
By Siegel Rare Neuroimmune Association (SRNA)
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Subscribers: 3
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Episodes: 159
Description
The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sending an email to info@wearesrna.org and please use SRNA Podcast in the subject.
| Episode | Date |
|---|---|
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Ask the Expert 1312. Parenting is Hard | Part 6
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Sep 08, 2025 |
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Ask the Expert 1311. Understanding Myelitis: Efforts to Update Diagnostic Criteria
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Aug 25, 2025 |
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Ask the Expert 1310. Prevention and Treatment of Skin Breakdown
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Aug 11, 2025 |
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Ask the Expert 1309. Parenting is Hard | Part 5
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Aug 04, 2025 |
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Ask the Expert 1308. Parenting is Hard | Part 4
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Jul 28, 2025 |
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Ask the Expert 1307. Parenting is Hard | Part 3
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Jul 21, 2025 |
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Ask the Expert 1306. Community Spotlight | Roopa Ramamoorthi, PhD and Marie Abrego
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Jul 14, 2025 |
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Ask the Expert 1305. FES 101
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Jul 08, 2025 |
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Ask the Expert 1304. Parenting is Hard | Part 2
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Jun 30, 2025 |
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Ask the Expert 1303. Parenting is Hard | Part 1
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Jun 23, 2025 |
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Ask the Expert 1302. Pelvic Floor Therapy for Bladder and Bowel Management
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Apr 21, 2025 |
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Ask the Expert 1301. Vaccines and Immunosuppression
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Feb 18, 2025 |
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Ask the Expert 1216. Transcutaneous Spinal Stimulation
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Nov 08, 2024 |
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Ask the Expert 1215. Women's Health within Neuroimmunology
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Nov 04, 2024 |
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Ask the Expert 1214. Self Identity and Finding Meaning Following Diagnosis
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Oct 29, 2024 |
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Ask the Expert 1213. Operant Conditioning Rehabilitation Studies
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Sep 06, 2024 |
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Ask the Expert 1212. The Role of Physicians and Patients in Legislative Advocacy
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Aug 07, 2024 |
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Ask the Expert 1211. Community Spotlight - Kim Harrison
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Jul 29, 2024 |
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Ask the Expert 1210. Community Spotlight - Paula Jones
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Jun 28, 2024 |
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Ask the Expert 1209. What is ULTOMIRIS?
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May 31, 2024 |
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Ask the Expert 1208. MOGcast | Understanding Cortical Encephalitis
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May 03, 2024 |
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Ask the Expert 1207. MOGcast - The Latest in Treatments from an Adult and Pediatric Perspective
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Apr 26, 2024 |
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Ask the Expert 1206. Community Spotlight - Voices of SRNA Volunteers | Part 2
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Apr 15, 2024 |
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Ask the Expert 1205. Community Spotlight - Voices of SRNA Volunteers | Part 1
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Apr 08, 2024 |
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Ask the Expert 1204. Community Spotlight | Ilona Williams
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Mar 22, 2024 |
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Ask the Expert 1203. Community Spotlight | Rick Telander
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Mar 15, 2024 |
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Ask the Expert 1202. Increased Intracranial Pressure in Pediatric MOG Antibody Disease
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Feb 16, 2024 |
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Ask the Expert 1115. A Conversation about Grief and Loss with Chris Lopardi
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Dec 21, 2023 |
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Ask the Expert 1114. Neurosarcoidosis and Rare Neuroimmune Disorders
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Dec 04, 2023 |
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Ask the Expert 1113. Acute Treatments and Rare Neuroimmune Disorders
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Nov 28, 2023 |
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Ask the Expert 1112. Social Determinants of Health in Rare Neuroimmune Disorders
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Nov 17, 2023 |
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Ask the Expert 1111. Dr. Anderson's Fellowship Research
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Oct 18, 2023 |
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Ask the Expert 1110. Can Do MS | Take Charge and Coaching Series
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Oct 13, 2023 |
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Ask the Expert 1109. Disability and Rare Neuroimmune Disorders Part 2 | Accessibility and Disability Pride
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Jul 24, 2023 |
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Ask the Expert 1108. Disability and Rare Neuroimmune Disorders | Part 1
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Jun 05, 2023 |
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Ask the Expert 1107. Update: Study to Investigate the Safety of the Transplantation of Human Glial Restricted Progenitor Cells into Patients with Transverse Myelitis
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May 31, 2023 |
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Ask the Expert 1106. CosMOG | Clinical Trial for MOGAD Treatment
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Apr 24, 2023 |
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Ask the Expert 1105. What to Expect Living with NMOSD and MOGAD Long-Term
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Apr 19, 2023 |
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Ask the Expert 1104. Community Spotlight | Paul Turner
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Apr 05, 2023 |
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Ask the Expert 1103. Community Spotlight | Melanie Flood
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Mar 14, 2023 |
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Ask the Expert 1102. COVID-19 and the Risk of CNS Demyelinating Diseases
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Feb 20, 2023 |
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Ask the Expert 1101. What do we know about holistic therapies to manage symptoms of rare neuroimmune disorders?
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Jan 30, 2023 |
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Ask the Expert 1011. Health Disparities and Rare Neuroimmune Disorders
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Sep 15, 2022 |
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Ask the Expert 1010. Immunology of Rare Neuroimmune Disorders | Part 3
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Aug 29, 2022 |
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Ask the Expert 1009. Air Travel with a Disability | Blind and Guide Dog Travel
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Aug 26, 2022 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part VII with Dr. Greenberg
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Aug 22, 2022 |
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Ask the Expert 1008. An Update on Poliomyelitis
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Aug 11, 2022 |
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Ask the Expert 1007. Immunology of Rare Neuroimmune Disorders | Part 2
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Jul 18, 2022 |
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Ask the Expert 1006. Immunology of Rare Neuroimmune Disorders | Part 1
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Jun 16, 2022 |
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Ask the Expert 1005. Community Spotlight | Ben Harris
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Jun 06, 2022 |
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Ask the Expert 1004. Community Spotlight | Paul Garrett
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May 21, 2022 |
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Ask the Expert 1003. Managing Spasticity with a Baclofen Pump
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Mar 21, 2022 |
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Ask the Expert 1002. The Future of Diagnosing Transverse Myelitis
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Feb 21, 2022 |
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Ask the Expert 1001. Study of Transverse Myelitis in Veterans Health Administration Records
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Feb 14, 2022 |
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Ask the Expert 913. Avoiding a Misdiagnosis | Understanding the Differences Between MOGAD, MS, and NMOSD
|
Jan 12, 2022 |
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Ask the Expert 912. MOG Antibody Disease | Diagnosis and Treatment Guidelines
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Dec 07, 2021 |
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Ask the Expert 911. Temperature Sensitivity and Rare Neuroimmune Disorders
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Nov 03, 2021 |
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Ask the Expert 910. Acute Disseminated Encephalomyelitis | Diagnosis and Treatment Guidelines
|
Oct 21, 2021 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part VI with Dr. Greenberg
|
Aug 19, 2021 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part V with Dr. Greenberg
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Aug 16, 2021 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part IV with Dr. Greenberg
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Aug 16, 2021 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part III with Dr. Greenberg
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Aug 16, 2021 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part II with Dr. Greenberg
|
Aug 16, 2021 |
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Ask the Expert Bonus Track | COVID-19 Vaccines Part I with Dr. Greenberg
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Aug 16, 2021 |
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Ask the Expert 909. Transverse Myelitis | Symptom Management
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Aug 10, 2021 |
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Ask the Expert 908. Talking With Your Child About a Difficult Diagnosis
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Jul 26, 2021 |
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Ask the Expert 907. Transverse Myelitis | Diagnosis and Treatment Guidelines
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Jun 22, 2021 |
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Ask the Expert 906. The Role of CDC and Public Health in AFM Surveillance | Part II
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May 31, 2021 |
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Ask the Expert 905. The Role of CDC and Public Health Agencies in AFM Surveillance | Part I
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May 20, 2021 |
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Ask the Expert 904. Behavioral and Psychological Changes in Demyelinating Conditions | Part 2
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Apr 21, 2021 |
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Ask the Expert 903. My child has just been diagnosed with AFM. What do I need to know?
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Mar 16, 2021 |
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Ask the Expert 902. Study on Pediatric Teleneuropsychology
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Mar 02, 2021 |
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Ask the Expert 901. Dr. Michael Levy’s Research at The NMO Clinic and Research Laboratory at Mass General
|
Feb 19, 2021 |
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Ask the Expert 809. Managing Visual Issues
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Dec 14, 2020 |
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Ask the Expert 808. MOG Antibody Disease: Adult and Pediatric Presentations
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Oct 19, 2020 |
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Ask the Expert 807. Behavioral and Psychological Changes in Demyelinating Conditions
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Aug 13, 2020 |
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Ask the Expert 806. Latest Updates on COVID-19 and Rare Neuroimmune Disorders
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May 13, 2020 |
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Ask the Expert 805. Helping Children and Families Manage and Cope with Stress During COVID-19
|
Apr 09, 2020 |
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Ask the Expert 804. Neuroimmune System 101 / A primer on how the nervous and immune systems work together
|
Mar 19, 2020 |
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Ask the Expert 803. What is neurosarcoidosis?
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Feb 19, 2020 |
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Ask the Expert 802. Newly Diagnosed with a Rare Neuroimmune Disorder: What You Need to Know
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Feb 11, 2020 |
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Ask the Expert 801. Everything You Need to Know About Spasticity and How It's Treated
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Jan 30, 2020 |
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Ask the Expert 718. Optic Neuritis — When is it just ON and when does it mean more?
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Dec 12, 2019 |
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Ask the Expert 717. Fatigue and Rare Neuroimmune Disorders
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Dec 05, 2019 |
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Ask the Expert 716. Genetic Study of AFM
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Nov 14, 2019 |
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Ask the Expert 715. Nerve Transfers and AFM: Part Two
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Aug 13, 2019 |
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Ask the Expert 714. Nerve Transfers and AFM: Part One
|
Aug 09, 2019 |
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Ask the Expert 713. Imaging Patterns in Myelopathies and Myelitis
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Aug 08, 2019 |
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Ask the Expert 712. Understanding Spinal Cord Strokes and Other Vascular Myelopathies
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Jul 24, 2019 |
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Ask the Expert 711. The Role of CDC in AFM Surveillance
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Jul 24, 2019 |
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Ask the Expert 710. Managing Neuropathic Pain and Paresthesia
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Jun 19, 2019 |
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Ask the Expert 709. The Q Study — Q&A
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Jun 19, 2019 |
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Ask the Expert 708. Quality of Life: Adaptive Driving
|
May 24, 2019 |
|
Ask the Expert 707. Managing Pediatric Urological Issues
|
May 22, 2019 |
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Ask the Expert 706. Parent's Perspective on AFM
|
May 16, 2019 |
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Ask the Expert 705. Quality of Life: Mindset and Healthy Habits
|
Apr 24, 2019 |
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Ask the Expert 704. Managing Adult Urological Issues
|
Apr 24, 2019 |
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Ask the Expert 703. Relapsing vs Monophasic Rare Neuroimmune Disorders
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Apr 12, 2019 |
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Ask the Expert 702. Pediatric MOG Antibody Associated Disease and ADEM
|
Mar 20, 2019 |
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Ask the Expert 701. Autoimmune Encephalitis and Rare Neuroimmune Disorders
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Jan 18, 2019 |
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Ask the Expert 611. Pregnancy and Rare Neuroimmune Disorders
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Dec 20, 2018 |
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Ask the Expert 610. What You Need to Know about Caregiving
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Oct 18, 2018 |
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Ask the Expert 609. 2018 Podcast on Acute Flaccid Myelitis
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Oct 18, 2018 |
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Ask the Expert 608. Air Travel with a Disability: Your Rights, Best Practices, and Suggestions
|
Sep 24, 2018 |
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Ask the Expert 607. Research 101: Finding, Reading, and Understanding Research
|
Sep 04, 2018 |
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Ask the Expert 606. Navigating Life After A Rare Neuroimmune Disorder: Social Security, Benefits, Assistive Technology, and More
|
Jul 10, 2018 |
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Ask the Expert 605. What is MOG Antibody-Associated Disease?
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Jul 10, 2018 |
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Ask the Expert 604. Aging with rare neuroimmune disorders
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Apr 24, 2018 |
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Ask the Expert 603. Understanding and Managing Spasticity
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Mar 27, 2018 |
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Ask the Expert 602. Alternative therapies for the treatment of rare neuroimmune disorders
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Mar 01, 2018 |
|
Ask the Expert 601. Stem Cells as a Treatment for Rare Neuroimmune Disorders
|
Jan 23, 2018 |
|
Ask the Expert 511. Rheumatological conditions and ADEM, NMOSD, TM and ON
|
Dec 11, 2017 |
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Ask the Expert 510. How to Manage and Cope with Grief
|
Nov 21, 2017 |
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Ask the Expert 509. How to get the most out of your appointments: Physician and patient perspectives
|
Sep 25, 2017 |
|
Ask the Expert 508. Gaining Functional Recovery through Occupational Therapy
|
Aug 22, 2017 |
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Ask the Expert 507. Open Forum on Acute Disseminated Encephalomyelitis
|
Jul 13, 2017 |
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Ask the Expert 506. Open Forum on Neuromyelitis Optica Spectrum Disorder
|
Jun 21, 2017 |
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Ask the Expert 505. Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis
|
May 25, 2017 |
|
Ask the Expert 504. The Role of Nutrition in Managing Your Health
|
Apr 18, 2017 |
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Ask the Expert 503. Managing your health after a rare neuroimmune diagnosis
|
Mar 21, 2017 |
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502. Vaccinations and rare neuroimmune disorders
|
Feb 22, 2017 |
|
501. Building a multidisciplinary team for complex care after a diagnosis of ADEM, NMOSD, ON, and TM (including AFM)
|
Jan 19, 2017 |
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411. Quality of Life in a Wheelchair
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Dec 19, 2016 |
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410. Contraception, pregnancy, delivery and child care after a diagnosis of ADEM, NMOSD and TM
|
Nov 21, 2016 |
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409. Special Podcast — Understanding Acute Flaccid Myelitis
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Nov 16, 2016 |
|
408. Sexual function and quality of life after a diagnosis of ADEM, NMOSD and TM
|
Oct 27, 2016 |
|
407. Understanding Types of Research in ADEM, NMOSD, and TM, including AFM
|
Sep 29, 2016 |
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406. Back-to-School Preparation for Students with Demyelinating Diseases: Legal and Neuropsychological Perspectives
|
Jul 12, 2016 |
|
405. Open Forum on TM including AFM, NMOSD, ON and ADEM
|
Jun 21, 2016 |
|
404. Learning About Acute Disseminated Encephalomyelitis
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May 19, 2016 |
|
403. The Power of Sharing Stories
|
Mar 30, 2016 |
|
402. Comprehensive Management of Neuropathic Pain
|
Feb 24, 2016 |
|
401. Diagnosing TM, NMO and ADEM
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Jan 27, 2016 |
|
313. Our Lives: Our Stories
|
Dec 16, 2015 |
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312. Bowel, Bladder, and Sexual Dysfunction in TM, NMOSD, and ADEM
|
Nov 30, 2015 |
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311. Educational Support Services: Understanding IEPs and 504 Plans for Students Diagnosed with TM (including AFM), ADEM, and NMOSD
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Oct 20, 2015 |
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310. CAPTURE - Town Hall Meeting
|
Sep 02, 2015 |
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309. Developing a Cardio and Strength Training Program at Home after a Non-Traumatic Spinal Cord Injury
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Aug 24, 2015 |
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308. Living with Myelitis (TM/AFM, NMO, ON, ADEM): Navigating Life, School, College, Work and Beyond
|
Jul 13, 2015 |
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307. Living with a diagnosis of TM including AFM, NMO, or ADEM as an adolescent and young adult
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Jun 15, 2015 |
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306. NMO Studies and Clinical Trials: What Should I Know?
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May 13, 2015 |
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305. Depresión y Disfunción Cognitiva después de un Diagnóstico de Mielitis Transversa, Neuromielitis Óptica y Encefalomielitis Aguda Diseminada
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Apr 17, 2015 |
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304. Understanding Depression and Cognitive Dysfunction After A Diagnosis of TM, NMO, and ADEM
|
Apr 13, 2015 |
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303. Understanding Neuromyelitis Optica and Neuromyelitis Optica Spectrum Disorder: NMO-101
|
Mar 13, 2015 |
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302. Hablemos de Mielitis Transversa y Neuromielitis Óptica
|
Feb 16, 2015 |
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301. Understanding Vaccinations and Autoimmune Diseases
|
Jan 22, 2015 |
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210. Understanding Transverse Myelitis: TM 101
|
Dec 09, 2014 |
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209. Support for Caregivers: How to cope when a loved one is diagnosed with NMO, ADEM or TM?
|
Nov 13, 2014 |
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208. Update on Outbreak of Paralysis in US: Acute Flaccid Myelitis
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Oct 16, 2014 |
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207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases
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Oct 13, 2014 |
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206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM
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Sep 16, 2014 |
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205. Understanding Clinical Trials in NMO and TM
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Aug 18, 2014 |
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204. Understanding Pediatric NMO, ADEM and TM
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Jul 18, 2014 |
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203. The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury
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Jun 16, 2014 |
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202. Understanding & Managing Neuropathic Pain
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May 10, 2014 |
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201. Understanding Autoimmunity & Rare Neuroimmune Disorders
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Mar 25, 2014 |
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103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations
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Dec 17, 2013 |
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102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury
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Sep 17, 2013 |
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101. Ask the Expert Podcast in Collaboration with RGI
|
Feb 08, 2013 |